Day 5 - Monday

Poor Sofia. We are trying our best to combat her sadness. She just seems so down today. She threw up twice, which I know is no picnic. She is still struggling with gastro issues, which hopefully resolve themselves soon. She is getting regular miralax. She is still on oxygen today because she is still desating when she's in pain. She doesn't want to take deep breaths because it is probably hurting her chest. She doesn't want to move around a lot today, which is discouraging. We took her to the play room and she didn't have interest in anything. Adelaide came to see her today. They have never been apart this long before. Trying not to get discouraged by today because it is just one day. Once these pesky chest tubes can come out and once her belly is feeling normal again I think we'll see our old Sofia come back. Can't wait.

This is the face of the day :(

but when I asked her if she was sad, she made this face. This picture made my day