Full Speed Ahead

Finally getting a minute to update. Sofia is doing well at home, and she has resumed to a lot of normal activities, which we are grateful for. I'm actually home with the girls today because Oliver started his new job today. I am enjoying spending some extra time with my two favorite girls. I will be at home with them today and tomorrow and two days next week. After that, if Sofia is well enough, we have a new babysitter who is going to come to our house two days/week. She is actually someone Oliver knew from the YMCA, and he coached her younger brother this year on his swim team. She is 21, going to college part time for special ed, and seems like she will be a good fit. She had a "trial run" with the girls before Sofia's surgery and things went well.

Sofia has made a lot of progress since her surgery, but still has a ways to go. Her stamina is improving. We are encouraging her to nap during the day because going the whole day without one makes for a long day for her. She wasn't napping regularly before surgery, so I'm sure once she's feeling 100% she'll cut naps out again. Most of the time, she seems pain free. We are still giving her Tylenol when she gets uncomfortable. The worst time seems to be overnight, and last night she woke up several times. I'm hoping she'll get a full night's rest soon. She is so upset when she wakes up in the night and it is hard to calm her back down. We had a busy Memorial Day weekend and it was evident that Sofia is still healing. We went to my godson's birthday on Saturday and she got overwhelmed and tired and we left early. We had lunch on Sunday with our extended family and she held up well, and on Monday we had a barbeque at my mom and dad's house. That was easier because we just kind of took it easy.

She is still on lasix twice per day. It must taste awful because she never wants to take it. She was always pretty good at taking other meds when she's needed them before. Today she had a lasix and orange juice cocktail and that seemed to go over pretty well. She's usually always better at taking meds for her daddy, and since he's not here today I thought this morning would be more challenging. I'm glad she's just on lasix and apirin.

We follow up with her cardiologist, Dr. Edwards on Wednesday. I'm interested/nervous to see where her sats are. There are moments when she looks pink and there are moments she looks blue, especially when she's upset about something. I'm hoping for the 90s tomorrow!

There's more I'd like to type, but the girls are pulling me away. I'll update more after her appointment tomorrow.